Introduce Yourself!

Hello my name is Sara Geurts. You can also find me on IG as my name too. I am from MN but try to travel when able as I have and advocate for multiple disorders. (Ehlers Danlos Syndrome, Epilepsy, CCI, and Gastroparesis are just a few).


I actually just recently was in a long hospital stay which sparked Medical PTSD. I am hopeful to also start advocating for that as well. Too many of us go through too much while being already put silently on hold, pushed to the side, or treated like we're not people while among them. It's dis heartening, scary and happens to often. More awareness around the subject is definitely needed as well as all of the others that I currently advocate for as well.

I currently live with all the conditions I advocate for, which is why advocating for them means that much more to me. If you want to know more you can look at my socials (SaraGeurts). I am fully disabled, being the seizures, my CCI and joints dislocating from my EDS, which really impacted my whole life about 3 years ago, as I loved working and being independent... it's taken alot to get everything under control and sometimes I still don't understand why but I just have to remind myself of the bigger picture, the why, the others that are still out there gaining the awareness from everything that we as a collective are doing from what we're going through at this moment. That is why we're doing this.

Thank you for reading, hope to see you on my socials, love & good vibes, light and support to you all ✨️🫶❤️

Hi Everyone 😁 I'm Tammy I love in Leicester and I'm 37 years old. I have a rare condition called Eosinophilic Gastroenteritis. I'm here to make new friends and share my story hoping to inspire others too ❤️

Hi there! I'm Rebecca (almost 55 yo). Originally from Buffalo, NY, I now live in Phoenix, AZ. I advocate for Axialspondyloarthritis.net, Migraine.com, and Asthma.net

Diagnosed with axial spondyloarthritis about 8 years ago, I have been trying to manage the severe pain and debility from this inflammatory arthritis the best I can. I advocate for this disease because it provides individuals with AS a platform to connect with others living with the disease, share their experiences, and offer support. Ultimately, it empowers individuals to have their voices heard, ensuring that their needs are recognized and addressed effectively.


I enjoy watching movies, reading, writing, exploring, and traveling. I have a BFA in Dance which motivates me to continue to express myself through movement. Just recently, I've also dipped my toes into animal advocacy and have fostered 2 lovely babies who truly needed support. Advocacy, much like continuous learning, empowers us to adapt, grow, and thrive in an ever-changing world. It is a wonderous avenue aimed toward fostering empathy and understanding, breaking down barriers, and creating a more inclusive and supportive environment for those affected by our condition. I wish everyone well-being and harmony.

Hi, I'm Michelle. I live in Michigan. I am an advocate for migraine and headache disorders. I recently attended Headache on the Hill in March. I live with Chronic Migraine, Hypermobile Ehlers Danlos Syndrome, Klippel Feil Syndrome, TMJD, DDD, arthritis, chronic pain, depression, anxiety, and numerous others. My career is social work. I have been employed at the same agency for 23 years. Counting down to retirement. Then my focus is going to be on advocacy. I am involved with numerous migraine and headache disorder agencies, as well as a few other areas of pain I live with.