FeaturedActive todayHave you been part of a support group?Have you ever started a support group? If you have not started one yourself but are part of one, what have you enjoyed most about it? Is yours virtual or...Reactions 0 reactions Comments16 replies
FeaturedActive 7 days agoHave you experienced imposter syndrome?Do you become overwhelmed in speaking heavily on a subject and then wonder how effective you are in sharing, and whether you are qualified to advocate at all on the...Reactions 0 reactions Comments15 repliesAdvocacyCommunityTips & Advice
Active todayOn the Road to Remissionhttps://www.amazon.com/dp/B08QRB3H3G...Reactions 0 reactions Comments2 repliesAwareness
Active todayAre you passionate about sharing your journey with chronic pain conditions?Do you want to inspire others and spread awareness about living with illness? We want to hear from you! Become a guest on Butterfly Chats Podcast and share your story...Reactions 0 reactions Comments1 repliesAwarenessCoping
FeaturedActive todayHave you ever considered getting or do you have a service, working, therapy, or emotional support animal to help with your medical condition?Share a picture of your furry-loved companion (does not have to be for your medical condition)! We'd love to see them! If you have a service, working, therapy, or emotional...Reactions 0 reactions Comments76 repliesCopingTips & AdviceAwareness
Active todayIs Advocacy Your Side Gig or Career?I have found such a great way to make a little change from speaking and writing about my health condition. At first, I felt bad making money off of my...Reactions 0 reactions Comments17 repliesAdvocacy
Active 4 days agoHow do I get more involved with conferences and speaking? How do I get more involved with conferences and speaking I spoke at the Crohn’s and colitis foundation fall symposium and part of there task force and a member of...Reactions 0 reactions Comments2 repliesHealthcare CollaborationAdvocacyAwareness
Active 5 days agoWithin your advocacy, what term(s) resonate with you most?How do you typically refer to your community leadership, and/or what terms resonate with you most? Health Advoacay? Patient Advocate? Patient/Caregiver Health Leadership? Patient/Caregiver Activist? Other?...Reactions 0 reactions Comments5 repliesAdvocacy
Active 6 days agoIntroduce Yourself! Welcome! We’re so glad to have you here! 😊 You’re joining a community with the most inspiring people you’ll ever meet! Take a moment to introduce yourself! Where are you...Reactions 0 reactions Comments24 repliesCommunity
Multiple Health IssuesHi! I am Cindy, from Richmond, Vermont. I have a number of health issues - Rheumatoid Arthritis, Lung Cancer and Heart Attack survivor, sleep apnea, high blood pressure, and high...Reactions 0 reactions Comments2 repliesAdvocacyHealthcare CollaborationInsurance & Disability